Birdies and omg hot!!

I really do mean it when I say we are not accustomed to this sort of weather! its been what now? two weeks since it started to get warm. And I know I have complained about it ever since and for good reason! but to be fair my daughter's eczema hasn't been any worse today, its been more because of seats she has been sat on more than anything! That and her being irritable because of the heat but I think we all were!

After her Saturday morning swimming lesson we went to Gauntlet bird of prey centre in Knutsford as I had a groupon voucher to use! and it was worth it, some really nice birds. Its not a whole day out, but possible a mornings worth or at least an hour. We didn't stop for the displays as it was just too hot in the sunshine to be sat  with no shade ( and no breeze!!) But I only paid £4 which was less then a adult ticket, and the voucher i had would have got five people in, two adults, 3 children with drinks! ( which we were very grateful for at the end! ) But it was a good little trip out, and the children seemed to enjoy it. Though some of the birds seemed to be watching the little man, as if pondering... "hrrrm snack!! "

Snowy owls.. or a bit obvious but called Hedwig in our house lol 

"Oooh Snack!!"

 "Say What!?!"

And one cheeky little chappy who didn't want to wear his hat, but don't worry is full of sun cream and we were not out for long!! (though funny thing is his sister and he both tan where his dad and I burn.. hrrm!) 

After we saw the birds of prey we had a little visit to the Airport viewing park as there was an event on ( old buses, cars, craft stalls etc) and so the kids were happy to see the airplanes coming in and taking off and we got to see a couple of friends which is always nice!  

So all in all a good day, I even have my free Persil samples to try out :) now just need some grubby clothes because oh that will be so hard to find in this house lol!! ending the day listening to Dr Who Proms.. (Thank you bro for reminding me it was on! ) Bring on another warm day tomorrow and a party.  

Proud mummy!

As promised a picture of our exploits from our Thursday craft sessions!  the yellow triangle thing was meant to be a frog ( it does hop if pushed). At the back is a basket ball hoop .. ball is around somewhere, a fortune teller thing and a paper airplane! She spent alot of time doing these with other parents and the people running the group until daddy came along as the little man decided he didn't want to sit and draw or sit in his pram he wanted to scream and run around. Soooo embarrassed! And very thankful other mums were understanding. Especially when at one point i was saying to my daughter we were going to have to leave and she stepped in and said she could sit with them. So nice!

Paid for her to do some activities in the summer so we have broken the weeks up a little, now just need to arrange with family etc any days out of spending time at each others and i might not kill the kids ;) Love them really but lots of work of course!  Can't believe they break up next week! At the same time though i don't fancy the appointment we have to do either :(

On a good note today was given my daughters school report ( i never even knew they got one!) hers was glowing and full of praise. I know at 5 there are not alot of things to say and they haven't done much but even with all her health problems she doesn't let it stop her! she has shone through with all her hard work and it says she perseveres with a challenge! way to go girl! and don't you dare give up on doing it! As well as that she has moved up, not one but two stages in her reading!! omg! its not long since she moved up into this one she was in. It's scary! and last time i said she should move up the teacher said it was normal for them to be in a group for a while.. yet they go and boost her up two! so when she starts in year 1 in September she'll have a reading age of at least those in the year above. Not sure i can keep up! but we have bought her some new books as a little gift for being so good and various other things. Shes growing up so fast!

Sorry bit of a mummy rant today i best leave before you all grow bored! :D going to a bird of prey centre tomorrow and need to remember the sun cream!! and a little party on sunday! whooo :) going to be a good weekend! hope everyone else has fun x

Support?

You know when you just want to bang your head out of fustration? I felt like this last night. I felt torn over what to do and actually what to say. I run a Eczema support group on Facebook (Literally Eczema Support if you want to come and join us) but on this group, I do not allow/ condone selling of any sort and financial gain from referrals. People suffering from Eczema and looking after those with Eczema would literally give their right arm to try something new to help. Often sleep deprived is it right that people come and try selling this new miracle cream with barely any pictures and stories which can be sometimes hard to believe? I'm all for wanting to try something new but i need facts, figures, pictures fgs!!

So last night two people were taking off, not by me as I was too chicken but my admin and sis who like me thought it was a bit dodgy and selling.  It just gets me so wound up and yet these people think its okay to come and do this and don't see any problems.

I saw this yesterday, and I thought it struck home a bit :

I feel this is particularly poignant as sometimes I do not know how I can keep going with my daughters Eczema and I know this sounds overly dramatic but it's constant. A continuous fear, whats going on, whats causing it. is this cream working, is it infected, why can't she sleep etc! but at the same time as her Eczema she has these other issues with her legs which I have said before. I'll admit I have spent many times crying over the situation and crying on the phone to my mum wondering why this was happening and that I couldn't cope. But here I am. So all the normal fears of a mum with extras on top!! No i'm no super mum, i shout and scream and paddy if i have to too and sulk as my hubby would agree. my escape include a long quiet bath with a book and chocolate! ( No chocolate in the bath though) 

It's Thursday again and so I've been blogging for two weeks, thank you for staying with me, I appreciate the support and hope I've not bored anyone too much, those who have given me feedback have been positive without bribes :)  so i'm not stopping any time soon! We have the grand choice today of doing origami at the library craft session, or going to schools pop concert. Hrrm I know what id rather!! But letting daughter decide as its her crafting sessions etc. Watch this space! all week she has said Origami but i feel this might change!

I hope today isn't as annoying as the latter end of yesterday. Have a good day whatever you are doing x

 

Christmas in July?

No really I know it is 5 months away and please don't shoot me for bringing it up, but I am not sure if I am super organised or just plain pathetic that I have bought another two.. yes thats right "another" presents for my daughter.

Don't get me wrong these aren't huge things and I was not planning on getting her lots for christmas as after all we are on a budget ( Isn't everyone?) But I keep seeing things in pesky stores like Home Bargains!

Found both of these in Home Bargains for £1.99. Pretty sure the Moshi Monster game is meant to be cheaper so I shall check later in the week! but for that price I honestly can't walk past them and wait for closer to the time because they would be gone. Didn't realise the Xia Xia thing didn't actually come with figures but I'm hoping they are easy to find. Good old Ebay might help me there! And if it means I am not spending a fortune and my daughter get's things she will actually play with and use then I am happy. And so is my bank account lol. Only the other week I bought lots of little push out things for Moshi Monsters, the full set in HB and it was under £7.. I love this shop!! 

According to the weather today it has cooled down a bit... doesn't feel like it, especially after walking up to the drs, round to the shops and home again! phew. Speaking of the drs I am not impressed ( I know am I ever?!) last week when we took the little man in for his croup, i asked them about some bandages my daughter needs ( see previous bandage regime!) and got told no letter had arrived from my dermatologist. Except something in June which  I thought was just regarding the childrens appointment. Oh no.. there were several pages attached according to the receptionist today, who helpfully  printed it off so I could see and we were able to order the right bits. I just wish it wasn't such a pain to do! Why should it have to be a fight all the time :(.   I've been a receptionist and was never as rude as some of these. Being polite goes along way especially when its a concerned mum! 

Right whilst little man is asleep i better go and hide these toys and perhaps get something productive done other than my blog.

Enjoy your day!

Melting!

Oh golly gosh I am so not use to this sort of heat! I am aware other countries have it alot hotter but 28 degrees with humidity is ugh!! too hot. Yes I am one of "those" brits, I do not like it hot. Cold I can deal with as you can wrap up and use blankets etc. There are only so many layers you can take off before there are no more!

Finally had a call from the clinical nurse yesterday, only taken her a week and a half to get in touch. she has discharged my little boy ( as they can't keep them on unless there is specific treatment) and we are going to see how he goes. No one seems bothered however that he seems to get a illness/ cough etc straight to his chest every couple of weeks. It's not right! But shall have to see how he goes. This cough he has at the moment should be going within a week.

Not sure I can function to post a blog its too hot! lol, Ice creams aren't working and soon running out when both children want one and then yourself and that's before hubby comes home! Would go and sit in the garden but it's roasting out there and no shade to sit in. (under the parasol not helping!)

Had a lovely time at play group this morning and was very brave! I wore a dress, gasp, shock horror and all that. But I did it,  I was brave and seeing as i have some real issues with body imagine I think I did well! no comments or even stares! Then again I am sure there are worse sights in town.

That was from this morning when I was slightly less brave and had a shawl on but it grew too hot for that! 

Finally managed to get the children into bed, though I see a long night ahead tonight, it is so muggy and warm. Already got bandages on my daughter which won't help anything. She is so red raw :( Even little man was coming out in a rash of sorts today. times like these I wish i could take it away from them. I also feel like I am a failure, I know I'm not and that I am doing my best for them, but no one wants to see their child suffer. All she wanted to do was go into the paddling pool and I said no as her legs were weeping, so much so she was struggling to walk home!! we only live 15 minutes walk from school ( childs pace). It's heart breaking!! 

Hopefully it being slightly cooler tomorrow might help, or I might have to start giving her daily showers ( I don't normally as it irritates her skin). just anything to help! Another week before we have pediatric and dermatology appointments ( and end of school!!). Roll on another day! 

No Monday blues today!

No Monday blues today, it's too sunny to be upset or down because it is the start of the week! Had a decent weekend, the weather was lovely, had some nice friends of hubbies over ( not sure if i can say mine yet lol)  Got a few bargains. Only problem has been daughters eczema really which I have already discussed over the weekend and this morning in the other blog post.

No one seems to believe me when I say hot weather really does cause her damage. I don't want to keep her locked away but at the same time running around, sweating, rolling in grass etc is driving her skin nuts! Told the teacher today, as well as my daughter that she can't be rolling around in the grass as she was a mess after school Friday. Thank fully it's not as messy today but I've had to send her in bandages, ( tubifast) just to cover up the worst bits and to try and prevent any bad contact, especially since her knee was weeping already this morning. :(

She swam her first gala yesterday and we are so proud of her, three girls in each race and yes she came last, and didn't win anything but she tried and she was a big girl enough not to get upset. She did so well and the girls swimming with her were two stages above where she is as well as having had private lessons. So considering my little girl has only been swimming since Oct she did fantastic! Only thing we weren't overly happy about is that we had to pay to watch. Having not been before this was a shock coming through the door and we had to scrimp really really scrimp in my purse to find the right money! Thank goodness we had it! But I suppose this is the problems with going cash less these days? Least we know for next time. It was so warm in there though! little boy was soaked with sweat after :( Also he wanted to nurse and I was not comfortable with so many people around O_O.  Not that it's anyone's business what I do but not in such close proximity!

Also very proud of my little sister in law who is only 7 but just barely missed out on being 3rd in her race. She did really well as the girls swimming with her are also older than her! sure we have a couple of fish in the family, or is it mermaids? ;)

got the leap frog toys and so glad we did as my little boy loves the lap top! other toy needs new batteries but no biggie. Love swapping/ buying sites! on that note finally sold the other dresses I had on ebay, brand new never been worn.. bloody lucky buyer getting them for £2... I paid £10 for the two. but oh well as long as they are used and are going to someone who really needs a all cotton dress ( which are harder to find then you think!! )

Going to crack on with the house hold chores.. or go and sit outside in the sunshine! Have a lovely day.

Bandage regime!

Just thought I would show a selection of pictures and things that are involved when it comes to having to bandage my daughter with her severe eczema. This use to take up to and over an hour especially when I was doing all four limbs. Yesterday I only did one arm and one leg.

The selection of things needed to carry out the work. Dermol cream (the only moisturiser that works for her! ) normally i put steroid cream on as well but didn't yesterday as I forgot! Viscopaste bandages or as they are known in the house, "cheesy" bandages. Don't ask but my daughter came up with it so we let her keep the name! a normal bandage for over the top of the cheesy one, micropore tape, scissors to cut up the viscopaste and normal bandage and last but not least green or blue line tubifast bandages depending on where you are working on! blue for legs, green for arms.

So first the cheesy bandage! this is a tricky one and you can't do anything else whilst working with it as you get covered in paste! with these ( which are normally used for leg ulcers!) you have to zig zag back and forth over the bandage first one way then the other. So it doesn't fall down apparently! Never just wrapped it round so I don't know if it does! 

This is with the normal bandage over the top, trying to make sure that she can still bend her arm afterwards! 

 With the tubifast bandage over the top! can't see the green line here but this is all done! ( the picture above)


 The one on the right is of her leg.

So going off the picture i posted previous of the back of her leg, this is the result after two hours! ignore the little white bits it's just the residue from the viscopaste!

Nothing to do with the above pictures but this is my poor babies neck yesterday, covered in eczema and little spots that i think we have been told before is the start of an infection. It did look better after being in the pool however!