Thursday, 11 July 2013

Support?

You know when you just want to bang your head out of fustration? I felt like this last night. I felt torn over what to do and actually what to say. I run a Eczema support group on Facebook (Literally Eczema Support if you want to come and join us) but on this group, I do not allow/ condone selling of any sort and financial gain from referrals. People suffering from Eczema and looking after those with Eczema would literally give their right arm to try something new to help. Often sleep deprived is it right that people come and try selling this new miracle cream with barely any pictures and stories which can be sometimes hard to believe? I'm all for wanting to try something new but i need facts, figures, pictures fgs!!

So last night two people were taking off, not by me as I was too chicken but my admin and sis who like me thought it was a bit dodgy and selling.  It just gets me so wound up and yet these people think its okay to come and do this and don't see any problems.

I saw this yesterday, and I thought it struck home a bit :
I feel this is particularly poignant as sometimes I do not know how I can keep going with my daughters Eczema and I know this sounds overly dramatic but it's constant. A continuous fear, whats going on, whats causing it. is this cream working, is it infected, why can't she sleep etc! but at the same time as her Eczema she has these other issues with her legs which I have said before. I'll admit I have spent many times crying over the situation and crying on the phone to my mum wondering why this was happening and that I couldn't cope. But here I am. So all the normal fears of a mum with extras on top!! No i'm no super mum, i shout and scream and paddy if i have to too and sulk as my hubby would agree. my escape include a long quiet bath with a book and chocolate! ( No chocolate in the bath though) 

It's Thursday again and so I've been blogging for two weeks, thank you for staying with me, I appreciate the support and hope I've not bored anyone too much, those who have given me feedback have been positive without bribes :)  so i'm not stopping any time soon! We have the grand choice today of doing origami at the library craft session, or going to schools pop concert. Hrrm I know what id rather!! But letting daughter decide as its her crafting sessions etc. Watch this space! all week she has said Origami but i feel this might change!

I hope today isn't as annoying as the latter end of yesterday. Have a good day whatever you are doing x