Finally we are getting somewhere

It's been a month since my last vent, and i feel like i shouldn't leave it so long. Not that i want to vent now generally things are going ok. We are finally getting somewhere with all these appointments!

Though I'm still not happy with how the physio treats us i do feel this will slightly change when we go to see her next. We had a Rheumatolgy appointment today for our eldest and in minutes it was confirmed she had joint hypermobility syndrome and that yes her knees are lax and the wouldn't be doing all the freaking things they do if they weren't lax!!

As you can see here, knees are not suppose to be like that!! 

And here her elbow is not in a very natural position ( i apologise for the silly face!  but the ice cream was a "safe" treat! )

So we were told today that her ankles and knees were hypermobile!!  they shouldn't be moving as much as they are well thank goodness that someone has finally sat down and listened instead of telling me its bloody growing pains!! her elbows yes do flex a bit more then they should but its her lower half we are talking about. Now this is probably something she is going to have to deal with till she is atleast 18 ( fingers crossed)  Poor love on the way home from the hospital asked me if it is something she can deal with... see sometimes i think all this is too much for a 6 yr old to deal with!! 

Dermatologist is suppose to be referring us on for some family counselling but heard nothing just yet ( and i will be checking up on this) and i know it sounds extreme but i think we could really use it! I can't cope with the mood swings, her going from being a lovely caring little girl to being a tired, whining, angry person. It's extreme! 

Eczema hasn't been terrible, i think it has something to do with the half decent weather we have been having. Don't get me wrong its there, its sore its on her neck back, chest , arms and knees but its "ok"  both the kids are getting tans!  ( and even me.. yes me, miss blue has colour!!)

We go camping in just over two weeks and i can't wait to have some time away. We are going to Norfolk! its been 10 years since we were last there ( ... that is a scary thought in itself!!) And look forward to it. I just hope madams hayfever/allergies etc don't kick off and that we don't have too much pain whilst we are out. 

Two weeks till holiday, two weeks till summer holidays and my baby going up into year 2!! Won't be long before the youngest is going to nursery either. where is time going?