Thursday, 26 February 2015

I have an allergy... to stupid people!

Normally I wouldn't like to use the term allergy  to something more light hearted or joking like the title of this post but this last week people in the non allergy world if you could call it that, have been taking the biscuit to the extreme!!

Came across a group on facebook called "Allergies are bulls***" I'm not one that likes swearing, as I just wasn't brought up like that and it took friends in highschool to "teach" me to swear, I was quite naive I suppose so firstly ugh swearing, secondly this page claims that parents and people are just using the term allergies to garner some attention.  Firstly allergies are very serious, being it milk, egg, gluten, nuts etc etc. So someone thinking we are just after attention  really strikes at the heart of not just myself but a full group of people who have to handle allergies on a daily basis, which can range from checking the food whilst shopping, putting cream on, taking medicine. It can be a huge part of our lives. So... ouch :(

Also this week we had the findings in  research regarding peanuts, a great study which has shown that children who may develop a peanut allergy ( ie those with eczema and a egg allergy) are tested to see if firstly they react to a skin prick test to peanuts and then they slowly build up a tolerance and in 86% of the children they didn't develop a peanut allergy at this stage which is fantastic! ( here is the link about the study http://www.theguardian.com/society/2015/feb/23/feed-babies-peanuts-reverse-allergy-rise)
Since this was broadcast in the news some people perhaps thinking they had good intentions have messaged people i know telling them its ok now just give the little darlings some nuts.. erm. Sorry this isn't going to help those who already have a nut allergy. Someone was also told to give their poor child a snickers, they would only "puff" up a few times. seriously? do people not realise how serious allergies can get?

(Taken from the NHS website)

Symptoms of allergies 

The symptoms of an allergic reaction can vary, depending on which substance (allergen) you are allergic to.
If you are allergic to substances in the air – such as pollen, animal dander and dust mites – the symptoms usually include:
  • rhinitis  sneezing and a blocked, itchy or runny nose
  • conjunctivitis  itchy, red, streaming eyes
  • asthma  wheezing, breathlessness and a cough
If you are allergic to a certain food or medication, symptoms can include:
You can also be allergic to substances coming into direct contact with the skin, such as perfumes, soaps, hair dyes and metal jewellery. This causes a type of eczema known as contact dermatitis.
It is important to remember that these symptoms can also be caused by other conditions, so see your GP for advice if you're not sure what's causing your symptoms.

Sensitisation

The symptoms of an allergic reaction do not happen the first time you come into contact with an allergen, but at a later point of contact.
This is because the body’s immune system has to develop sensitivity to the allergen before you can become allergic to it. In other words, your immune system needs to recognise and memorise the allergen (for example, pet hair or pollen) and then make antibodies against it. This process is known as sensitisation.
The time taken to become sensitised to an allergen varies from days to years. Some people stop in the sensitisation phase, as they experience symptoms, but never fully develop an allergy.

Anaphylaxis

In very rare cases, an allergy can lead to a severe allergic reaction, called anaphylactic shock, which can be fatal.
Most allergic reactions occur locally in a particular part of the body, such as the nose, eyes or skin. In anaphylaxis, the allergic reaction involves the whole body and usually happens within minutes of coming into contact with a particular allergen.
The symptoms of anaphylactic shock can include any or all of the following:
  • swelling of the throat and mouth
  • difficulty swallowing or speaking
  • difficulty breathing
  • a rash anywhere on the body
  • flushing and itching of the skin
  • stomach cramps, nausea and vomiting
  • a sudden feeling of weakness, due to a fall in blood pressure
  • collapsing and becoming unconscious
However it is obvious in other circles that people really don't know how serious allergies can get. I have a friend who has let me discuss an incident that has occurred this week. my friends child has several food allergies, most of which lead to Anaphylactic reactions. A child at my friends child's school decided to take it upon themselves to see if they were really allergic to the foods they have said they are. This child has managed to take the other child's lunch box and contaminate it with yoghurt, taking great care to put it in the wrap for lunch and in the bottom of fruit compartments. Thankfully the child was seen messing with the lunch and the right people were alerted before anything serious where to happen! My friend had to come and collect the lunch and provide a new one which obviously is a cost if people are like us and like to plan and have a certain amount in! This could cause issues, or rather it would if it were us!   The parents of the child in the wrong were informed of the incident and their response to my friend " Are X's allergies real? " and proceeded to say the school had been a bit harsh to their child. 

 If i had found out that one of my children had taken someone's lunch and decided to do their own experiments to see if a child was really allergic to an item of food I would go balistic. This could have had the real potential to kill a child and the parents are very blaise about it all? HOW? Why are they not up in arms that their child could have caused the death of another!!!  I would be also very apologetic to the allergy child's parents. But this is not the case. I am so angry on behalf of my friend and really want to urge people to take a moment and think. 

Allergies have the potential to kill, no ifs and buts there really are children out there and people as we have seen in the news recently that are dying due to a lack of understanding on allergies. We don't do this for attention.

Personally I would rather not have to check menus every time we want to eat, or labels, not have to carry a bag full of life saving medicine everywhere for just incase.
 I would rather have a easy life, no, eczema, asthma, allergies, hayfever.(On top of her joints being in agony every day.. )  But we are just not so lucky as everyone else so its something we have to man up with and its taken a year but we are manning up!  

Now there is a "cure" for the stupid people, its called reading and gaining some knowledge. I hope that they never have to face what us in the allergy community do. 

Friday, 13 February 2015

February half term already!

This year is going by so fast already, we are at February half term,  so the kids have been at school 5 weeks since new year! scary!  we celebrated the little boys 3rd birthday last Saturday! with a trip to London to go and see some dinosaurs and under ground trains that he loves so much!

Birthday boy!
Eldest and her beloved stuffed dog Georgie



This is how apparently Chelle is spelled in Starbucks outside Enbankment station....   I'm going to pick a new name for myself for these places!!

It was a good day, we managed to have lunch somewhere in peace ( imagine that!) though the museums where very busy and we had to que to see the dinosaurs in the natural history museum for a good 40 minutes! which was not good for our eldest who was struggling even when topped up with paracetamol and ibuprofen.  As we were not running around London trying to show our friend around the tourist stuff we thought we would try and see if she could manage without us hiring a wheelchair... that was a huge mistake!! just because we put her through so much pain.

Went to the doctors as our latest pram broke due to sometimes needing her to go in so we could get home  and or to drs appointments when unable to walk and asked for a wheel chair referral. Right i know what most of you are probably thinking, like what the hell sometimes we see this child running around being "normal" but there are days when she just can't walk, she more or less gets down stairs and collapses on the couch. like this morning ( thank goodness its an inset day at school!) because her knee is red hot and sore. We can't do simple shopping trips! We can't have family days out without screaming pain. It's not just stuff she doesn't want to do its everything!  she ends up locking her knee and walking very very strangely.

  
As shown in the video which she didn't know was being filmed, is from over the Christmas break when we spent some time up north with family.  We had already had a 20/ 30 minute break because of pain there and she didn't want to go into the toy shop... a sure sign that all isn't right!! 


Since showing the physio that video she refused to do anything more to help our daughter as she didn't want to cause any more damage to her and tbh ever since we started physio her issues have been getting worse not better not sure if that is a coincidence or not! Finally got a referral to a rhumatologist! though i have been telling them since we moved that we needed one, it shouldn't be such a farce! That is what i feels like all the time, a farce, a fight to just get someone to listen and not think i'm a over reactive parent. It is so hard to stand and watch as you daughter  struggles to walk home from school and its not terribly far. We have no referral to wheel chair services and have to wait for the rhumatolgist appointment in March which isnt terribly far away thankfully ( and i'm dragging hubby to it for back up! ) 

We can only hope that like last year that we will get more answers and more support because it feels sometimes that we are floundering in all this mess! 

Hopefully we have family visiting this week and we can't wait! just wish we could see everyone else too!  but we can't always be the ones traveling up even if we are the ones that moved! Scary how much it costs to come up for a visit! £80 ish in fuel but prob less with the price of fuel atm( that is inclusive of both ways). You then have food at service station unless you take your own so both ways possible £20 each way, normally buy a magazine for the children to do in the car on the way up so thats at least £2 each. Then anything whilst we are up there, food days out O_O scary!!! Also i know our family can't keep paying that either so makes it one of the harder reasons for our move.  Because i do miss how close everyone was really compared to now! 

Not sure when our next trip up is, thought possibly at Easter but not sure! will have to discuss with hubby for best time and when he can have time off work and madam off school etc. so many factors, you don't think of these things when you move, we once said we would try and be up once a month  but that is just not fully feasable with how quick a visit goes and how long it takes to travel up. A weekend just doesn't seem long enough :( esp when you have several lots of family to see. ( as we couldn't go up and not see people!! Hopefully this year we will learn to cope  with the traveling and quick visits.  

Don't take for granted the family you see every week because you soon miss everything. Even if we didn't see everyone every week it was the opportunity too that is now missing.