Government forms oh the joy!

Not that many people know, but I am dyslexic and dyspraxic. I find it sometimes difficult to spell and to write grammatically correct, thank goodness for  spell checker and my hubby who helps me whenever I am stuck! But I am in charge of filling out the forms as with our daughter I am her main career in terms of doing her creams, going to all the appointments etc as hubby works full time so it only makes sense that I do it, but geeze this form is so long and complicated and asks questions again but in a different way so you have to make sure to re word it to go with the question but at the same time not making any mistakes that sounds like you don't need any help.

It got me rather down today thinking of it all. Now I know ok, that my daughter is happy, she is intelligent ( boy is she! ) but thinking through it all, what limitations there might be on her, what processes we have to go through just for a simple day out or just going to the pool are  well.. immense! making sure all medicines have been taken, creams put on, the right choice of clothing, a cushion if needed. etc. And its not like she has any food allergies! I'm not sure how other mums and dads do it! This is why sometimes I feel so helpless and.. lacking as a parent as I am not coping! then again this is one of the reasons why I made Eczema Support!

Blah! okay not thinking of any more government forms today, I shall finish it tomorrow if possible and get it photocopied so I know what I can write for next time! As I have filled one of these out before but last year! Suppose since Eczema etc changes that she could be" fine" this time next year... oh I wish! We shall see what happens this week though as we go for our hospital appointment on Thursday and our dermatology appointment on Friday! busy week really!

In other news i've been testing out the new Persil product and I am not overly impressed, scrubbed the solution into daughters school dresses and they are still grubby! and yet put it in with little man's vests, one not covered in food etc or chocolate ( like another one had been and been scrubbed and it hadn't all come out) but the collar had been stained a different colour, this colour had come out!! and I didn't even scrub it. Very odd and seems to be hit and miss but I shall keep trying it!

Play group party tomorrow, should be good, not to hot and some time out with the family before more form filling! all good really!  Let the week continue! Please forgive me for the ramble as I need this outlet x

Car boot bargains!

Should know by now that I love a good bargain and though we turned up to the car boot rather later this morning ( was heading on for 11 am as we needed a couple of bits from Asda first) we managed to get a little umbrella fold buggy ( that makes the total in the house now to 4! ) but it was really cheap and deffinatly small enough for the car for our camping trip!  our other bargain was a tv/dvd combi in Pink! ( omg was my daughter happy) for £5! and it works! so one very happy child who will eventually have a tv in her room. We just need something strong enough to put it on.

After that we had a lovely little family party to celebrate my youngest nephews 10th birthday!  and we got to see my step dads mum who has been really ill recently. So it was a really good day with family and one for bargains!

The sun is still shining but we had a nice breeze to go with it today, though the sun beating down on your back still proved to be rather hot!! the children had fun playing with the grandparents water hose though and it was only the little man who got really wet! and his vest soon dried off in the sunshine!  Only problem was I've left some cakes there that I was going to take to play group and one of my daughters sun hats -_- we always forget something!!

We have had an idea regarding next weekend and are hoping to do a car boot ourselves to try and raise some money for our holiday! even got daughter involved in aide to selling some of her toys she gets to have some extra spending money! Not sure how much I am going to be able to find, even though we have plenty of junk around the house! here's hoping, though I have already started a box!  If anyone wants to come and give a hand or wants to donate to selling ( yes yes being cheeky! :-p ) feel free  :) Or if you want to come and have a look we are hoping to go on Hindley car boot next Sunday!

Monday again tomorrow! least see what this week brings...

Birdies and omg hot!!

I really do mean it when I say we are not accustomed to this sort of weather! its been what now? two weeks since it started to get warm. And I know I have complained about it ever since and for good reason! but to be fair my daughter's eczema hasn't been any worse today, its been more because of seats she has been sat on more than anything! That and her being irritable because of the heat but I think we all were!

After her Saturday morning swimming lesson we went to Gauntlet bird of prey centre in Knutsford as I had a groupon voucher to use! and it was worth it, some really nice birds. Its not a whole day out, but possible a mornings worth or at least an hour. We didn't stop for the displays as it was just too hot in the sunshine to be sat  with no shade ( and no breeze!!) But I only paid £4 which was less then a adult ticket, and the voucher i had would have got five people in, two adults, 3 children with drinks! ( which we were very grateful for at the end! ) But it was a good little trip out, and the children seemed to enjoy it. Though some of the birds seemed to be watching the little man, as if pondering... "hrrrm snack!! "

Snowy owls.. or a bit obvious but called Hedwig in our house lol 

"Oooh Snack!!"

 "Say What!?!"

And one cheeky little chappy who didn't want to wear his hat, but don't worry is full of sun cream and we were not out for long!! (though funny thing is his sister and he both tan where his dad and I burn.. hrrm!) 

After we saw the birds of prey we had a little visit to the Airport viewing park as there was an event on ( old buses, cars, craft stalls etc) and so the kids were happy to see the airplanes coming in and taking off and we got to see a couple of friends which is always nice!  

So all in all a good day, I even have my free Persil samples to try out :) now just need some grubby clothes because oh that will be so hard to find in this house lol!! ending the day listening to Dr Who Proms.. (Thank you bro for reminding me it was on! ) Bring on another warm day tomorrow and a party.  

Proud mummy!

As promised a picture of our exploits from our Thursday craft sessions!  the yellow triangle thing was meant to be a frog ( it does hop if pushed). At the back is a basket ball hoop .. ball is around somewhere, a fortune teller thing and a paper airplane! She spent alot of time doing these with other parents and the people running the group until daddy came along as the little man decided he didn't want to sit and draw or sit in his pram he wanted to scream and run around. Soooo embarrassed! And very thankful other mums were understanding. Especially when at one point i was saying to my daughter we were going to have to leave and she stepped in and said she could sit with them. So nice!

Paid for her to do some activities in the summer so we have broken the weeks up a little, now just need to arrange with family etc any days out of spending time at each others and i might not kill the kids ;) Love them really but lots of work of course!  Can't believe they break up next week! At the same time though i don't fancy the appointment we have to do either :(

On a good note today was given my daughters school report ( i never even knew they got one!) hers was glowing and full of praise. I know at 5 there are not alot of things to say and they haven't done much but even with all her health problems she doesn't let it stop her! she has shone through with all her hard work and it says she perseveres with a challenge! way to go girl! and don't you dare give up on doing it! As well as that she has moved up, not one but two stages in her reading!! omg! its not long since she moved up into this one she was in. It's scary! and last time i said she should move up the teacher said it was normal for them to be in a group for a while.. yet they go and boost her up two! so when she starts in year 1 in September she'll have a reading age of at least those in the year above. Not sure i can keep up! but we have bought her some new books as a little gift for being so good and various other things. Shes growing up so fast!

Sorry bit of a mummy rant today i best leave before you all grow bored! :D going to a bird of prey centre tomorrow and need to remember the sun cream!! and a little party on sunday! whooo :) going to be a good weekend! hope everyone else has fun x

Support?

You know when you just want to bang your head out of fustration? I felt like this last night. I felt torn over what to do and actually what to say. I run a Eczema support group on Facebook (Literally Eczema Support if you want to come and join us) but on this group, I do not allow/ condone selling of any sort and financial gain from referrals. People suffering from Eczema and looking after those with Eczema would literally give their right arm to try something new to help. Often sleep deprived is it right that people come and try selling this new miracle cream with barely any pictures and stories which can be sometimes hard to believe? I'm all for wanting to try something new but i need facts, figures, pictures fgs!!

So last night two people were taking off, not by me as I was too chicken but my admin and sis who like me thought it was a bit dodgy and selling.  It just gets me so wound up and yet these people think its okay to come and do this and don't see any problems.

I saw this yesterday, and I thought it struck home a bit :

I feel this is particularly poignant as sometimes I do not know how I can keep going with my daughters Eczema and I know this sounds overly dramatic but it's constant. A continuous fear, whats going on, whats causing it. is this cream working, is it infected, why can't she sleep etc! but at the same time as her Eczema she has these other issues with her legs which I have said before. I'll admit I have spent many times crying over the situation and crying on the phone to my mum wondering why this was happening and that I couldn't cope. But here I am. So all the normal fears of a mum with extras on top!! No i'm no super mum, i shout and scream and paddy if i have to too and sulk as my hubby would agree. my escape include a long quiet bath with a book and chocolate! ( No chocolate in the bath though) 

It's Thursday again and so I've been blogging for two weeks, thank you for staying with me, I appreciate the support and hope I've not bored anyone too much, those who have given me feedback have been positive without bribes :)  so i'm not stopping any time soon! We have the grand choice today of doing origami at the library craft session, or going to schools pop concert. Hrrm I know what id rather!! But letting daughter decide as its her crafting sessions etc. Watch this space! all week she has said Origami but i feel this might change!

I hope today isn't as annoying as the latter end of yesterday. Have a good day whatever you are doing x

 

Christmas in July?

No really I know it is 5 months away and please don't shoot me for bringing it up, but I am not sure if I am super organised or just plain pathetic that I have bought another two.. yes thats right "another" presents for my daughter.

Don't get me wrong these aren't huge things and I was not planning on getting her lots for christmas as after all we are on a budget ( Isn't everyone?) But I keep seeing things in pesky stores like Home Bargains!

Found both of these in Home Bargains for £1.99. Pretty sure the Moshi Monster game is meant to be cheaper so I shall check later in the week! but for that price I honestly can't walk past them and wait for closer to the time because they would be gone. Didn't realise the Xia Xia thing didn't actually come with figures but I'm hoping they are easy to find. Good old Ebay might help me there! And if it means I am not spending a fortune and my daughter get's things she will actually play with and use then I am happy. And so is my bank account lol. Only the other week I bought lots of little push out things for Moshi Monsters, the full set in HB and it was under £7.. I love this shop!! 

According to the weather today it has cooled down a bit... doesn't feel like it, especially after walking up to the drs, round to the shops and home again! phew. Speaking of the drs I am not impressed ( I know am I ever?!) last week when we took the little man in for his croup, i asked them about some bandages my daughter needs ( see previous bandage regime!) and got told no letter had arrived from my dermatologist. Except something in June which  I thought was just regarding the childrens appointment. Oh no.. there were several pages attached according to the receptionist today, who helpfully  printed it off so I could see and we were able to order the right bits. I just wish it wasn't such a pain to do! Why should it have to be a fight all the time :(.   I've been a receptionist and was never as rude as some of these. Being polite goes along way especially when its a concerned mum! 

Right whilst little man is asleep i better go and hide these toys and perhaps get something productive done other than my blog.

Enjoy your day!

Melting!

Oh golly gosh I am so not use to this sort of heat! I am aware other countries have it alot hotter but 28 degrees with humidity is ugh!! too hot. Yes I am one of "those" brits, I do not like it hot. Cold I can deal with as you can wrap up and use blankets etc. There are only so many layers you can take off before there are no more!

Finally had a call from the clinical nurse yesterday, only taken her a week and a half to get in touch. she has discharged my little boy ( as they can't keep them on unless there is specific treatment) and we are going to see how he goes. No one seems bothered however that he seems to get a illness/ cough etc straight to his chest every couple of weeks. It's not right! But shall have to see how he goes. This cough he has at the moment should be going within a week.

Not sure I can function to post a blog its too hot! lol, Ice creams aren't working and soon running out when both children want one and then yourself and that's before hubby comes home! Would go and sit in the garden but it's roasting out there and no shade to sit in. (under the parasol not helping!)

Had a lovely time at play group this morning and was very brave! I wore a dress, gasp, shock horror and all that. But I did it,  I was brave and seeing as i have some real issues with body imagine I think I did well! no comments or even stares! Then again I am sure there are worse sights in town.

That was from this morning when I was slightly less brave and had a shawl on but it grew too hot for that! 

Finally managed to get the children into bed, though I see a long night ahead tonight, it is so muggy and warm. Already got bandages on my daughter which won't help anything. She is so red raw :( Even little man was coming out in a rash of sorts today. times like these I wish i could take it away from them. I also feel like I am a failure, I know I'm not and that I am doing my best for them, but no one wants to see their child suffer. All she wanted to do was go into the paddling pool and I said no as her legs were weeping, so much so she was struggling to walk home!! we only live 15 minutes walk from school ( childs pace). It's heart breaking!! 

Hopefully it being slightly cooler tomorrow might help, or I might have to start giving her daily showers ( I don't normally as it irritates her skin). just anything to help! Another week before we have pediatric and dermatology appointments ( and end of school!!). Roll on another day!