On Tuesday we had a Doctors appoint at Manchester Royal children's hospital, and due to everyone i know with a car working or busy, i had to travel by bus, not a big deal.. ( she says carefully) would have helped if i could find that elusive bus pass! but alas it is gone. So we had 3 buses to take just to get us to the appointment. Laden with a pushchair, toddler and 6 year old, two lunches, stuff to keep them busy and my handbag oh and madams medicine bag ! How the push chair didn't tip over i'll never know, toddler in it or not! Though madam did carry her rucksack with medicine in it to help. Anyway! we left at something to 9 and got to the Childrens hospital at 10:45, obviously waiting for buses and walking are included in that,
The dr was running a hour late.. it i a good job the hospital is child orientated though mine spent most of the time eating their lunches. When we finally got called in, the dr took all of two minutes to say he hadn't had the bloods from Wigan and couldn't access them, ask how madam was didn't bother to look at her and said well i'm referrering you on to rheumatology and thats bout it. Didn't even try to ring Wigan to check even though I said they were ready as I had asked the day before. ( though didn't know the answers to any)
All it seemed to be was that he was trying to get us in and out as quick as possible as we were one of the more moveable appointments. But seriously? practically two hours to get there and an hour waiting to get told he is passing the case on. A phone call could have told us that!! A waste of a day out of school, a waste of money up there and a waste of time. I asked if it could be joint hypermobilty and he said it looks like it but without a firm diagnosis he couldn't say, i asked if there was anything i could do as the day before she had been in agony just from playing on the park after school ( and not for long) and all i get told is painkillers.. well er duh!!! i'm doing that already. I felt so deflated and the fact that i had to then make the journey back home was just daunting. Thankfully the toddler fell asleep and was asleep for most of the way back so gave me time to get myself some lunch and a quick ice cream for madam as it was rather warm.. and guess who was wearing a jumper!! i really hope the referral comes through soon, I have since been told the blood results were satisfactory.. so er i assume her vitamin d levels are ok? will wait and see what the pediatrican says!
Just makes me realise i need to drive ( though i know parking had been hell at the hospital, not good when you have a child who can't go long distances) its just the whole cost and i genuinely feel scared about learning to drive! i feel my own problems will hold me back, silly i know but its my issue.
Eczema still not good esp after a warm day yesterday at school madam came home a bit of a mess, think we might need to invest in a fan for her in school but due to the age of the kids i feel it would just be messed around with. its things like this and worries like this that make it seem so much bigger to deal with, its little things, things that no other parent even needs to worry about :(
nice holiday.. miracle money? time to plant the money tree it could really come in handy!!
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