Showing posts with label 2015. Show all posts
Showing posts with label 2015. Show all posts

Thursday, 1 January 2015

The end of 2014 and the start of 2015

Well it is the 1st of January 2015.. I know everyone will be doing what I'm doing, going over the last year and looking forward to this one! however there is only so much you can post on Facebook with what you would like to say!

I think that 2014 was a year of learning and growing ( even if hubby says how much more can we grow up we are adults!) But personally i think we have had to grow up and learn how to cope with alot of things and to take huge steps.

In March our eldest was diagnosed with a nut allergy, really rather scary! especially when you start seeing how much it is in everything yes even just may contains but not all companies are covering their back there, they have to have a proven risk to put on a may contain. I know people think I am paranoid and over protective but if it was your child would you let them play Russian Roulette with something that could potentially kill them? no you wouldn't so don't judge me when I am trying to protect my daughter from having a possible serious reaction. Epi pens after all should be used in an emergency not an excuse to eat your allergen.  Being on this particularly journey has opened up my eyes in  what we have in our foods and wondering why, and asking companies why there are these things and why is there a risk? and having big arguments along with other nutty mums with the giants like Tesco! (not good if you get annoyed easily!!)

In July we finally found out what was causing our eldest the pain in her joints, and that she has joint hypermobility syndrome. Now most people might know of hypermobility with people who are/ where termed as being double jointed! Now alot of people being hypermobile doesn't cause any issues and some actually find it useful, alot of footballers and dancers are actually hypermobile and it makes them more supple! Then you get people like our eldest, who gets the pain with it, only 10-15% of those with hypermobility actually suffer with the syndrome. (My source being Arthritis UK) Knowing what is wrong is just one part of the journey. Yes great we know she has JHMS ( joint hypermobility syndrome) but trying to get the help after that seems like hitting your head against a brick wall!  We are trying to keep her active, but a general walk around the supermarket is enough to cause widespread pain and wipe her out.  Don't  get me wrong some days shes ok, she can run around with her brother, walk to school and be ok. Then you have instances where she literally can't get out of the house. ( This is not for the lack of love for school as she was upset she was going to be off school for the winter break!)  It is very very draining and not alot of people understand or i think can deal with my moaning about it. I have cried over it, more then i should perhaps and i know there are people worse off then us. But this is a huge thing for us to deal with. Especially having no one close by to lean on. We have physio and a couple exercises and need her to get her back to swimming but we needed to get settled in to the new area and house first!

Which leads us to the big thing! our move to Bournemouth!! We moved in September and have been here now for just over 3 months. Silly, crazy hectic! it is hard being away from our family and friends, family the most and on our trips back that does hit home rather hard esp when we are trying to split our time when seeing everyone.  I hope the kids understand our decision when they are older, that we wanted something better for them, better environment. Eldest adores her school and they are so understanding of her issues ( all of them!) when the teacher wants to take you to hospital and rings up to see how everything is as she knows we have no one down here.. that is a sign of a good school ( or perhaps just a good teacher! ) We are however finding the car trips up and down easier and not so much of a slog we are getting use to the long trip so it doesn't feel so draining.. unless children are being sick!

I am not sure what 2015 is going to bring for us now that we are here, I am hoping that we will get some help with our eldest,  someone to give us good points to do instead of a blaise well do this this and this and she will be fine. No.. shes not.  Our youngest will go to nurser this year  after Easter as his birthday is in February he starts the term after then... Fingers crossed he will be willing to go! but i will cross that bridge when we get there! we will also see if he starts to talk more! Not that he doesn't make himself known but  we rarely get much more then a few words out of him!  Nothing else is planned, no holidays thought of  as most of our holiday time will be spent coming back to see family, however we do want to go to Cornwall whilst we are down here!

No big birthdays this year as that is next year! So we will just have to see what the future brings for us! It will never be a smooth ride but I am hoping that there arn't as many bumps in the road. Looking ahead!  Here is hoping it is smooth for everyone i know and love xx