Easter break!

Well the eldest broke up last Friday, and we haven't had any melt downs or tantrums yet seeing as it has been a week already! We haven't done a great deal, visited my sisters, watched dvd's and yesterday went to the park and had a naughty lunch of chippy chips! though the gravy was.. quite frank awful. ( not usually the case) the kids had fun running around and had a good time i think.

 I always worry about so much activity with my daughter due to her leg issues which i may think i've found a cause, though don't want to get hopes up of knowing. But all her symptoms link with joint hypermobility syndrome, now for some people this doesn't cause any issues at all people are just generally more flexible then others and then there are others who get pain or can't walk terribly far without it hurting, to the point where some are in wheel chairs ( which i do know of) Now she isn't wheel chair state of course, she can walk but will often start to say she is tired after a short time. I know most people will think this is a child being lazy but normal 6 year olds want to be off running around. not complaining they are hurting. This has sometimes in the past been called growing pains which i have been told before she has. ( sorry but no) these are not meant to swell and get hot and unable to move or touch her knee and now its affecting more then one joint. And JHMS normally causes pain at night, in the evening or after activity which happens to us!  Hospital appointment next week where well there is going to be a long list!! including allergy tests, her eczema and her legs. Don't ask me why we see the one dr for it all. Because it annoys the hell out of me!   Her eczema isn't great at the moment, we have gone back to basics with no preservitives in any of the creams and things we use.  She had two calm days last weekend and now? well her back and neck are not looking good and the crooks of her arms, arn't as bad as they have been but not brilliant. Going to trudge on though, least if they see how bad she they might not think i am lying or making it all up, I have also sent some pictures to DLA to try and help our case.  Unless you are in our shoes you have no idea what we have to  literally do every day!  But thats another post!!

This week i ordered another order from approved food and now have a huge lot of baking things to do lol and dumpling mix... yeah don't ask, i must have thought we were doing casaroles etc heh. Suppose we might have to, to use them up hah. Not much planned for today but the weekend sees us at the usual swimming etc, looking after a family member. Next week hubby is off  from Wednesday so least i have some back up when it comes to going to the hospital!