Sorry for the lack of quietness yesterday with everything going on and how hot it was I was just not in the mood to try and sit and write something. But today has been better and not so hot so i'm not melting with the laptop!!
For a change my daughter's eczema is actually healing.. I have never seen her skin so calm and it would be typical that after at least 12 months of it being awful and planning a dvd with her dermatologist that when we come to film it that my daughter is fine... well fine for her! no open sores, barely any redness. Nice to touch. in all her 5 1/2 years I've not seen her skin so nice. So what has caused this? and in conclusion I think it is the heat shock horror! at first and in the past with any amount of heat she has flared up horriblely and as the last couple of weeks, pictures and rants have shown it goes bad. But now that we have had this heat for three weeks her body is thinking oooooh I can heal this is nice! And it is, though we are still having problems with her joints and now a wobbly tooth ( don't ask! ) but nice skin and to give her a break even if it is going to be briefly is some relief!
DVD is for the project we are helping out our dermatologist with, it is a new pack that will be given to all "new" cases of eczema in children ( not sure if its adults as well). And we were more than happy to help. Won't go into more detail.. in case i'm not supposed too lol.
Today has seen us spend money on stuff i was not expecting to buy.. couple things for camping. and new clothes for missues, though some things in there are for the new school term! ( i need to spread it out!) However these clothes (apart from the polo tops) were all on sale thanks to Asda lol. Poor little man is the one who missed out today for a change!
Been preparing for the car boot tomorrow and not looking forward to the very early start! but needs must and hoping people will come and buy some things. please!! Just a bit of extra money for our holiday. Fingers crossed for fine weather and plenty people!
Saturday, 20 July 2013
Thursday, 18 July 2013
Wasting time
Personally I hate being late for things, and I hate wasting my time, be it on people on in appointments or just sat around waiting. I hate it! ( seems to be a theme of the week) I feel like my time has been wasted today in going to this Dr's appointment. We were not seen by our usual doctor, although she was there. (So i didn't get to have my go wondering why our appointments were moved around) And we've had to go through things again ( when you have a eczema, asthma etc suffering child you find in alot of appointments you are going through family history etc alot!!)
So we just seemed to go over what had been said before he checked her joints, her eczema is actually manageable today as well as her asthma as he said her chest sounded clear ( whoo!) But basically nothing has changed and I've been told she has growing pains. Even though it is affecting all her joints.. er I don't think so even looking at the web ( yes yes i know again) doesn't say it affects joints so... wtf!! Not happy at all. And Just ended up with two screaming children, one because blood was being taken from her again. And the other because he thought he was being seen too and because mummy was going into another room. (Hits head against a wall!). It's not fair.
But anyway she took it as she always does, mostly in her stride, though she does not like having her blood taken as they can't take it from her hand ( hard to get veins!) and no special spray on her elbow because of her eczema. Hate putting her through it. wondering if i should just stop and try and get on with it?
We had a nice time though after, took her for some lunch, and a ice cream and popped to school to pick up her medicine, though it was well past closing time! Feel a bit guilty for not getting her to say goodbye to some of her friends for the summer. as i don't have some of the mums contacts! doh!
So after melting at home we went to our last after school library session and melted in there instead!! and here are our creations. Thankfully this week Thomas didn't scream it down and was rather happy trying to decorate/ eat cake!!
We were only meant to do two each but because only a handful of us turned up instead of the 18 that had been listed we got to do 5 each lol. Daughter had one and little man had attacked the top of another but refused to let him eat it in the car as we had just cleaned it out this morning!
Tomorrow brings the first day of summer holidays and what are doing? we are back in town again with the dermatology department for an appointment.. as well as filming for a dvd!! all fun. Take care x
So we just seemed to go over what had been said before he checked her joints, her eczema is actually manageable today as well as her asthma as he said her chest sounded clear ( whoo!) But basically nothing has changed and I've been told she has growing pains. Even though it is affecting all her joints.. er I don't think so even looking at the web ( yes yes i know again) doesn't say it affects joints so... wtf!! Not happy at all. And Just ended up with two screaming children, one because blood was being taken from her again. And the other because he thought he was being seen too and because mummy was going into another room. (Hits head against a wall!). It's not fair.
But anyway she took it as she always does, mostly in her stride, though she does not like having her blood taken as they can't take it from her hand ( hard to get veins!) and no special spray on her elbow because of her eczema. Hate putting her through it. wondering if i should just stop and try and get on with it?
We had a nice time though after, took her for some lunch, and a ice cream and popped to school to pick up her medicine, though it was well past closing time! Feel a bit guilty for not getting her to say goodbye to some of her friends for the summer. as i don't have some of the mums contacts! doh!
So after melting at home we went to our last after school library session and melted in there instead!! and here are our creations. Thankfully this week Thomas didn't scream it down and was rather happy trying to decorate/ eat cake!!
We were only meant to do two each but because only a handful of us turned up instead of the 18 that had been listed we got to do 5 each lol. Daughter had one and little man had attacked the top of another but refused to let him eat it in the car as we had just cleaned it out this morning!
Tomorrow brings the first day of summer holidays and what are doing? we are back in town again with the dermatology department for an appointment.. as well as filming for a dvd!! all fun. Take care x
Wednesday, 17 July 2013
On the ball!
Well I am a little pleased with myself today, I hate and I mean hate ringing the tax office but I got my finger out and did it, it always makes me feel sick though because really they can change your life with what they say and what they give. And at the moment we rely on that money as it pays for the food coming in! Scary but don't want to think about that at the moment. Seeing as what money we have coming in has gone down i'm keeping fingers crossed that it would go in our favour. I just have this fear of being told off, a bit silly but you would think i would want to do these things sooner so i wouldn't get told off.... this is coming from a 27 year old. Yeah.
Long day today though, hot, sticky, even more hard work when daughter came home as she was in a horrible mood all the way home probably due to the weather but she was upset as one boy out of her class got a reward today, ( no one else did) seemed to be one person out of each class but she was upset and she is upset as she won't get her attendance one tomorrow as she is at a hospital appointment! I don't want to have to rush to put her into school for an hour seems like a waste of time. Not sure what to do at all! Oh to be 5 again and for these to be my only worries. I am just thankful that shes not been ill enough to miss a full day even will her issues.
Speaking of which it is our appointment tomorrow! I suppose I had better write down what i want to talk about or else I will forget. Again problems with being dyspraxic means I forget what to say or forget what's been said. I fear though we are going to get fobbed off again and nothing is wrong. Shall see what happens!
Been sorting out through the attic for some things to sell on the car boot on Sunday. Even selling a brand new tent. Trying to be ruthless .... so many books that we want to keep hold of but i know as well that they must go. ..I NEED a library lol. Alright I shall go and melt into bed and see what tomorrow brings.
Long day today though, hot, sticky, even more hard work when daughter came home as she was in a horrible mood all the way home probably due to the weather but she was upset as one boy out of her class got a reward today, ( no one else did) seemed to be one person out of each class but she was upset and she is upset as she won't get her attendance one tomorrow as she is at a hospital appointment! I don't want to have to rush to put her into school for an hour seems like a waste of time. Not sure what to do at all! Oh to be 5 again and for these to be my only worries. I am just thankful that shes not been ill enough to miss a full day even will her issues.
Speaking of which it is our appointment tomorrow! I suppose I had better write down what i want to talk about or else I will forget. Again problems with being dyspraxic means I forget what to say or forget what's been said. I fear though we are going to get fobbed off again and nothing is wrong. Shall see what happens!
Been sorting out through the attic for some things to sell on the car boot on Sunday. Even selling a brand new tent. Trying to be ruthless .... so many books that we want to keep hold of but i know as well that they must go. ..I NEED a library lol. Alright I shall go and melt into bed and see what tomorrow brings.
Tuesday, 16 July 2013
You know you are a parent when....
One bowl of cereal can cause chaos! As you can imagine mornings are a bit hectic as they are for many families, as well as getting my daughter up ready for school I have to make sure that she has all her creams on and all her medicine so i know she isn't going to suffer at school all day. Even though they do put cream on sometimes I don't personally think they do enough, though i do appreciate they have 20 + students to take care of. If only i had her to deal with but no, i have the 17 month old who likes to think he can have crisps for breakfast....seriously! several times this week and it's only Tuesday!!
So yesterday daughter wants cereal, this is fine, i make her a bowl not to large or small ( because you know i'll get into trouble because its one way or another!! ) and carry on seeing to the little monster.. er i mean my son whilst she is eating etc. After one of two mouthfuls she says she is full... right ok fine, tell her to take it through to the kitchen which she does.
Not ten minutes later she says she is hungry, which annoys me a bit and by now her original cereal is a heap of mush in the kitchen! so I say ok go and get some Soreen! but because i do this and the little man sees he wants some so ok, i go and get the other packet from the kitchen, having not noticed the little monster had been there already and got hold of the first bowl of cereal which had been on the edge of the counter and tipped it all and its mushy mess down the cupboard door and on the floor. One little bowl of cereal, that if daughter had eaten, would have saved two Soreen packets ( the lunch box size), saved a screaming toddler and saved a mess in my kitchen!! who would have thought it lol.
So yesterday daughter wants cereal, this is fine, i make her a bowl not to large or small ( because you know i'll get into trouble because its one way or another!! ) and carry on seeing to the little monster.. er i mean my son whilst she is eating etc. After one of two mouthfuls she says she is full... right ok fine, tell her to take it through to the kitchen which she does.
Not ten minutes later she says she is hungry, which annoys me a bit and by now her original cereal is a heap of mush in the kitchen! so I say ok go and get some Soreen! but because i do this and the little man sees he wants some so ok, i go and get the other packet from the kitchen, having not noticed the little monster had been there already and got hold of the first bowl of cereal which had been on the edge of the counter and tipped it all and its mushy mess down the cupboard door and on the floor. One little bowl of cereal, that if daughter had eaten, would have saved two Soreen packets ( the lunch box size), saved a screaming toddler and saved a mess in my kitchen!! who would have thought it lol.
Monday, 15 July 2013
Government forms oh the joy!
Not that many people know, but I am dyslexic and dyspraxic. I find it sometimes difficult to spell and to write grammatically correct, thank goodness for spell checker and my hubby who helps me whenever I am stuck! But I am in charge of filling out the forms as with our daughter I am her main career in terms of doing her creams, going to all the appointments etc as hubby works full time so it only makes sense that I do it, but geeze this form is so long and complicated and asks questions again but in a different way so you have to make sure to re word it to go with the question but at the same time not making any mistakes that sounds like you don't need any help.
It got me rather down today thinking of it all. Now I know ok, that my daughter is happy, she is intelligent ( boy is she! ) but thinking through it all, what limitations there might be on her, what processes we have to go through just for a simple day out or just going to the pool are well.. immense! making sure all medicines have been taken, creams put on, the right choice of clothing, a cushion if needed. etc. And its not like she has any food allergies! I'm not sure how other mums and dads do it! This is why sometimes I feel so helpless and.. lacking as a parent as I am not coping! then again this is one of the reasons why I made Eczema Support!
Blah! okay not thinking of any more government forms today, I shall finish it tomorrow if possible and get it photocopied so I know what I can write for next time! As I have filled one of these out before but last year! Suppose since Eczema etc changes that she could be" fine" this time next year... oh I wish! We shall see what happens this week though as we go for our hospital appointment on Thursday and our dermatology appointment on Friday! busy week really!
In other news i've been testing out the new Persil product and I am not overly impressed, scrubbed the solution into daughters school dresses and they are still grubby! and yet put it in with little man's vests, one not covered in food etc or chocolate ( like another one had been and been scrubbed and it hadn't all come out) but the collar had been stained a different colour, this colour had come out!! and I didn't even scrub it. Very odd and seems to be hit and miss but I shall keep trying it!
Play group party tomorrow, should be good, not to hot and some time out with the family before more form filling! all good really! Let the week continue! Please forgive me for the ramble as I need this outlet x
It got me rather down today thinking of it all. Now I know ok, that my daughter is happy, she is intelligent ( boy is she! ) but thinking through it all, what limitations there might be on her, what processes we have to go through just for a simple day out or just going to the pool are well.. immense! making sure all medicines have been taken, creams put on, the right choice of clothing, a cushion if needed. etc. And its not like she has any food allergies! I'm not sure how other mums and dads do it! This is why sometimes I feel so helpless and.. lacking as a parent as I am not coping! then again this is one of the reasons why I made Eczema Support!
Blah! okay not thinking of any more government forms today, I shall finish it tomorrow if possible and get it photocopied so I know what I can write for next time! As I have filled one of these out before but last year! Suppose since Eczema etc changes that she could be" fine" this time next year... oh I wish! We shall see what happens this week though as we go for our hospital appointment on Thursday and our dermatology appointment on Friday! busy week really!
In other news i've been testing out the new Persil product and I am not overly impressed, scrubbed the solution into daughters school dresses and they are still grubby! and yet put it in with little man's vests, one not covered in food etc or chocolate ( like another one had been and been scrubbed and it hadn't all come out) but the collar had been stained a different colour, this colour had come out!! and I didn't even scrub it. Very odd and seems to be hit and miss but I shall keep trying it!
Play group party tomorrow, should be good, not to hot and some time out with the family before more form filling! all good really! Let the week continue! Please forgive me for the ramble as I need this outlet x
Sunday, 14 July 2013
Car boot bargains!
Should know by now that I love a good bargain and though we turned up to the car boot rather later this morning ( was heading on for 11 am as we needed a couple of bits from Asda first) we managed to get a little umbrella fold buggy ( that makes the total in the house now to 4! ) but it was really cheap and deffinatly small enough for the car for our camping trip! our other bargain was a tv/dvd combi in Pink! ( omg was my daughter happy) for £5! and it works! so one very happy child who will eventually have a tv in her room. We just need something strong enough to put it on.
After that we had a lovely little family party to celebrate my youngest nephews 10th birthday! and we got to see my step dads mum who has been really ill recently. So it was a really good day with family and one for bargains!
The sun is still shining but we had a nice breeze to go with it today, though the sun beating down on your back still proved to be rather hot!! the children had fun playing with the grandparents water hose though and it was only the little man who got really wet! and his vest soon dried off in the sunshine! Only problem was I've left some cakes there that I was going to take to play group and one of my daughters sun hats -_- we always forget something!!
We have had an idea regarding next weekend and are hoping to do a car boot ourselves to try and raise some money for our holiday! even got daughter involved in aide to selling some of her toys she gets to have some extra spending money! Not sure how much I am going to be able to find, even though we have plenty of junk around the house! here's hoping, though I have already started a box! If anyone wants to come and give a hand or wants to donate to selling ( yes yes being cheeky! :-p ) feel free :) Or if you want to come and have a look we are hoping to go on Hindley car boot next Sunday!
Monday again tomorrow! least see what this week brings...
After that we had a lovely little family party to celebrate my youngest nephews 10th birthday! and we got to see my step dads mum who has been really ill recently. So it was a really good day with family and one for bargains!
The sun is still shining but we had a nice breeze to go with it today, though the sun beating down on your back still proved to be rather hot!! the children had fun playing with the grandparents water hose though and it was only the little man who got really wet! and his vest soon dried off in the sunshine! Only problem was I've left some cakes there that I was going to take to play group and one of my daughters sun hats -_- we always forget something!!
We have had an idea regarding next weekend and are hoping to do a car boot ourselves to try and raise some money for our holiday! even got daughter involved in aide to selling some of her toys she gets to have some extra spending money! Not sure how much I am going to be able to find, even though we have plenty of junk around the house! here's hoping, though I have already started a box! If anyone wants to come and give a hand or wants to donate to selling ( yes yes being cheeky! :-p ) feel free :) Or if you want to come and have a look we are hoping to go on Hindley car boot next Sunday!
Monday again tomorrow! least see what this week brings...
Saturday, 13 July 2013
Birdies and omg hot!!
I really do mean it when I say we are not accustomed to this sort of weather! its been what now? two weeks since it started to get warm. And I know I have complained about it ever since and for good reason! but to be fair my daughter's eczema hasn't been any worse today, its been more because of seats she has been sat on more than anything! That and her being irritable because of the heat but I think we all were!
"Oooh Snack!!"
"Say What!?!"
After her Saturday morning swimming lesson we went to Gauntlet bird of prey centre in Knutsford as I had a groupon voucher to use! and it was worth it, some really nice birds. Its not a whole day out, but possible a mornings worth or at least an hour. We didn't stop for the displays as it was just too hot in the sunshine to be sat with no shade ( and no breeze!!) But I only paid £4 which was less then a adult ticket, and the voucher i had would have got five people in, two adults, 3 children with drinks! ( which we were very grateful for at the end! ) But it was a good little trip out, and the children seemed to enjoy it. Though some of the birds seemed to be watching the little man, as if pondering... "hrrrm snack!! "
Snowy owls.. or a bit obvious but called Hedwig in our house lol
And one cheeky little chappy who didn't want to wear his hat, but don't worry is full of sun cream and we were not out for long!! (though funny thing is his sister and he both tan where his dad and I burn.. hrrm!)
After we saw the birds of prey we had a little visit to the Airport viewing park as there was an event on ( old buses, cars, craft stalls etc) and so the kids were happy to see the airplanes coming in and taking off and we got to see a couple of friends which is always nice!
So all in all a good day, I even have my free Persil samples to try out :) now just need some grubby clothes because oh that will be so hard to find in this house lol!! ending the day listening to Dr Who Proms.. (Thank you bro for reminding me it was on! ) Bring on another warm day tomorrow and a party.
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