I feel like a traitor as a mother, let me explain. Ever since we moved the professionals here are very dismissive of madams issues, they just say she has lax joints and that sports will help she will get better. Nothing more. No exercises to do, no specifics, we've asked for pain management help, someone for madam to talk to and what did we get? sent to a counselor, and then to a parenting course, why? because apparently madams issues are just anxiety and the pain she is in shouldn't be there.
Fine I said I will go on the parenting course, madam has been doing pe and two after school clubs, one football and one tennis/ football (two full terms of one then the other!) There has been 0 improvement, yes a couple calmer spots but that's it! the parenting course is more attuned to those who have behavioral issues and for the parents that might go bang over the smallest things, yes there were some small things I could take away and use but nothing concrete.
Yes my kids get a bit hyper and excited but they don't have behavioral issues. This isn't helping and its taking up my time, i've made no friends on this course and I am going to meet the course leader next week to talk about something else which may help but apparently thats not much better then what I have already done, her words not mine.
The last time we saw the physio we were told she would be happy to discharge.. after madam had her hips x-rayed to rule out hip dysplasia ( and i had to chase up this app.. as nothing had been said or done till i went and spoke to the dr! fgs. ) So all done.. and apparently her pelvis is normal. Not sure if they are including her hips etc into this diagnosis as no one has discussed it with me. I just rang and got, her pelvis is fine. Ok. ...
So I am waiting now for the physio to ring me and tell me we are discharged. I have worked myself up so much into thinking madam may have had hip dysplasia. That it could explain why her leg turns in, why her knee seems to suffer with bursitis so much. But, I've got myself so worked up for an answer a hope for some help and support that, when i got told it was normal I was devastated.
Now I know that seems incredibly odd that I wanted something to be wrong with her but I don't, I wanted something finally to go aha! that is what is wrong, this is how we can fix it. Now i feel back to square one. No one is listening or cares. No child IMO would keep up a charade so long and not want to go and do things like the park, or fun things if they were faking it. you cannot fake a knee turning in or it swelling. So why is no one listening? it has been thought that it could be all money based, they don't want to pay for referrals, or things to be done. It's easier to fob us off. All the while who is dealing with the fall out..... ME I'm dealing with the tears and the stress.
I don't know what the next step is, yes we should keep fighting but I'm getting so so tired of fighting and arguing and wanting people to listen, to see. What do i want out of all of this? Support, advice and knowledge of what to do. I don't think the following positions are normal.
See how her knees turn in? the right knee/ leg always sits like this, always when she is sat down. I would really love to hear from other parents, if their children who don't show signs of being Hypermobile, can do this? Without pain.
(note this was taken after a very hard mri scan she was well and truely fed up and tired)
Trying to show how her right knee falls in! two different mornings ( please ignore the mess!)













